![Huntington's Disease Society of America](https://media.trabajo.org/img/noimg.jpg)
President and Chief Executive Officer
2 months ago
The Batten Group, a premier national executive search and
consulting firm specializing in nonprofit, healthcare, higher
education, and mission-based philanthropy, has been retained by the
Huntington's Disease Society of America to conduct a national
search to identify candidates to lead the organization as President
and Chief Executive Officer.
About Huntington's Disease Society of America
(HDSA)
The Huntington's Disease Society of America, the premier
nonprofit organization dedicated to improving the lives of everyone
affected by Huntington's disease space, was founded in 1967 by
Marjorie Guthrie, widow of folk legend Woody Guthrie, who succumbed
to Huntington's disease. Initially established as the Committee to
Combat Huntington's Disease (CCHD), the organization became HDSA in
1983. Huntington's disease (HD) is a genetic order causing
progressive nerve cell dysfunction and eventual death. HD is
characterized by a triad of symptoms, including progressive motor
dysfunction, behavioral disturbance and cognitive decline. There
are approximately 41,000 symptomatic Americans and more than
200,000 at-risk of inheriting the disease.
Marjorie's vision for HDSA was to provide hope and support to
families affected by HD, advocate for research and treatments, and
raise public awareness. Ending her correspondences with "Love and
Peace", HDSA continues her legacy by funding research, offering
resources and support, and through the HDSA Centers of Excellence
across the country.
Through the dedicated efforts of the HDSA national staff and
network of amazing volunteers who lead chapters and affiliates, the
organization strives to achieve their mission to improve the lives
of everyone affected by Huntington's disease and their families and
to realize their vision of a world free of Huntington's disease.
HDSA funds research with the goal of discovering effective
treatments to slow Huntington's disease and eventually lead to a
cure. The HDSA Centers of Excellence program provides a
multidisciplinary team approach to Huntington's disease care. There
are currently 56 HDSA Centers of Excellence and 11 Partner Sites
covering 36 States plus the District of Columbia.
Position Summary
The Chief Executive Officer will report into and work
collaboratively with the Board of Trustees, leading the HDSA staff
and delivering on its short-term strategies and long-term vision.
Specifically, the CEO will ensure that HDSA's fiscal, operational,
fundraising, marketing, human resource, research, technology, and
programmatic goals are effectively prioritized and implemented
across all segments of the national organization.
Position Duties and Responsibilities
The major responsibilities of this position include, but are not
limited to:
Mission Impact
The CEO is responsible for advancing the HDSA's mission of
"improving the lives of everyone affected by Huntington's disease
and their families" on the path to our vision of a world free of
HD. This will be achieved by managing our pillars of Care,
Community and Cure through the funding of research, programs and
education, while leading the HDSA staff. The CEO works closely with
the Board to craft and adapt the strategy to achieve this increased
impact, including raising the funds to support it. With the support
of their team, the CEO will establish and build relationships with
top leaders in the business, scientific and philanthropic
communities. The CEO also engages the community to get involved in
research, providing community to each other, educating and reducing
the stigma of HD
Resource Development
The CEO is charged with driving key results in fundraising;
providing oversight in the identification, cultivation, and
solicitation of prospective donors and corporate partners;
leveraging personal and professional contacts and relationships
into fundraising opportunities; and promoting a culture of
fundraising at the staff and board levels.
Strategic Management
The CEO serves as the principal resource to the Board of
Trustees and its key committees and gives strong direction in
policy formulation and interpretation. The CEO will partner with
the Board of Trustees and the staff leadership team to craft
organizational goals and develop strategies to ensure that they are
achieved.
Organization Management
The CEO is accountable for building high-performing teams,
ensuring all teams are aligned and collaborating to achieve
organizational results. They maintain accountability for the
operational and fiscal integrity of the organization within
policies set by the Board of Trustees. The CEO assesses
organizational capacity and identifies gaps in systems and
staffing; directly supervises Senior Leadership positions and
establishes individual goals; works with the Chief Operating
Officer to manage organizational spending, monitors budget
compliance, and mitigates financial risks. The CEO will prioritize
the initiatives and efforts of the organization to achieve
significant goals as outlined by the strategic plan and guidance of
the Board of Trustees. Finally, the CEO will lead the organization
in building consensus, continuity, and a strong culture of "One
HDSA" to ensure mission alignment with our national office and
across our Chapters and Affiliates.
Position Requirements
ability.
A passionate sense of urgency to boldly move the HDSA mission
forward.
Relevant understanding of the nonprofit sector and interacting
with diverse constituencies and boards.
Expertise on issues relevant to the HDSA, including
philanthropy, research, programs, advocacy, financial and nonprofit
management.
Extensive senior strategic leadership experience in the
management of organizations of comparable size and mission.
Excellent ability to communicate including public speaking
Ability to earn the confidence and respect of
stakeholders.
A track record of building collaboration with internal and
external stakeholders.
Experience across multiple sectors, including nonprofit,
public, and corporate environments.
Experience in developing partnerships and building teams
Experience in revenue generation and increasing philanthropic
support.
The intellectual horsepower and intellectual curiosity
necessary to explore new ideas and innovative approaches to goal
management and problem resolution.
Unimpeachable integrity; a strong work ethic and sense of
accountability; managerial courage and strong decision-making
skills.
Candidate Qualifications
Outstanding presentation and communication skills and the
experience and proclivity to be an engaging spokesperson,
relationship builder and fundraiser.
A financially savvy and politically astute leader with the
ability to set clear priorities, delegate, and guide investment in
people and systems; keen analytic, organization, and
problem-solving skills, which support and enable sound
decision-making.
Excellent coalition-building skills with an ability to
communicate and work effectively with a variety of internal and
external stakeholders; a persuasive negotiator able to achieve
consensus amongst differing opinions.
Significant board development, fundraising, marketing/branding,
and fiscal management experience.
Strong commitment to the professional development of staff;
successful track record of development and retaining a diverse
team.
Prior relevant nonprofit experience ideal; management of a
scientific, programmatic and/or research related voluntary health
organization preferred.
Proven professional experience.
Minimum of a bachelor's degree, ideally with an MBA, MPH, or
related advanced degree.
POLICY ON PLACEMENT AND RECRUITMENT
The Batten Group and Huntington's Disease Society of America are
equal opportunity employers committed to the principles of
non-discrimination in the workplace. Candidates will not be
discriminated against based on age, race, creed, color, religion,
sex, sexual orientation, national origin, disability, marital
status or any other basis that is prohibited by federal, state, or
local law.
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