Head of Patient Engagement Marketing

1 week ago

Concord, New Hampshire, United States ITF Therapeutics LLC Full time

Company Overview

ITF Therapeutics is the U.S. division dedicated to rare diseases under Italfarmaco S.p.A., a privately held multinational corporation based in Milan, Italy. Founded in 1938, our mission is to enhance patient lives and overall health through innovative research and development, high-quality manufacturing, and global marketing of both prescription and over-the-counter products. With operations in the pharmaceutical and active pharmaceutical ingredient (API) sectors, Italfarmaco Group operates in over 90 countries, employing approximately 3,800 individuals, including 300 experts across four Research & Development centers, and achieving a turnover exceeding 1 billion Euros. The group is recognized for its offerings in critical therapeutic areas such as Women's Health, Neurology and Psychiatry, Cardiovascular and Metabolic health, and Rare Diseases.

In early 2024, Italfarmaco introduced ITF Therapeutics as a new division in the United States, focusing on the development and commercialization of treatments for rare diseases, including Duchenne muscular dystrophy (DMD), a severe genetic neuromuscular disorder. ITF Therapeutics successfully obtained FDA approval for Givinostat, the first nonsteroidal treatment for all genetic variants of DMD in patients aged six and older. Givinostat is a histone deacetylase (HDAC) inhibitor that has demonstrated potential in mitigating inflammation and fibrosis in muscle tissue, thereby decelerating disease progression. ITF Therapeutics is committed to collaborating with leaders in the U.S. patient advocacy and treatment communities to ensure our initiatives align with their unique needs and aspirations. The establishment of ITF Therapeutics also embodies Italfarmaco's ambition to assemble a world-class team of professionals dedicated to positively impacting rare disease communities.

Position Overview

As the Director of Patient Marketing at ITF Therapeutics, you will be tasked with formulating and executing strategic initiatives that resonate with the brand strategy, aimed at engaging and collaborating with individuals, caregivers, and families affected by Duchenne muscular dystrophy. Your role will be pivotal in influencing the company's brand image and facilitating the launch of an innovative treatment for an underserved rare disease population.

Key Responsibilities:

  • Oversee the creation, development, and implementation of the patient marketing strategy to support product launches and ongoing initiatives.
  • Manage the execution of patient education strategies across personal and non-personal channels, including media and digital strategies for both branded and unbranded content.
  • Navigate all Medical, Legal, and Regulatory (MLR) requirements related to Patient Marketing.
  • Collaborate with cross-functional teams, including Patient Advocacy, Thought Leader Engagement, and Healthcare Professional Marketing, to gather insights and create engaging content for patients, caregivers, and families.
  • Leverage digital outreach channels, including social media, to foster broad community engagement and analyze digital metrics to refine outreach strategies.
  • Develop digital marketing infrastructure, including customer relationship management (CRM) systems and other tools.
  • Identify opportunities for patient engagement through focus groups, conferences, awareness campaigns, and other events, coordinating ITF's presence at these gatherings.
  • Work with patient services teams to craft and disseminate effective branding and communications for patients.
  • Stay informed about market trends and insights, reporting findings to leadership.
  • Establish and maintain strong relationships with agencies and partner organizations to support ITF's initiatives.

Qualifications:

  • Minimum of 7 years of marketing experience, with a preference for rare disease or neurological disorder expertise.
  • At least 5 years of experience in marketing directly to patient populations.
  • Experience with product launches is highly desirable.
  • Proven success in identifying, initiating, developing, and maintaining strategic business relationships within the rare disease sector.
  • Experience with omnichannel marketing, including analysis and reporting.
  • Ability to understand and effectively communicate the unique challenges faced by individuals living with DMD, their families, and caregivers, while articulating current healthcare trends.
  • Demonstrated capability to manage and coordinate agencies, partners, and vendors to achieve strategic business objectives.
  • Experience in identifying and defining key performance indicators (KPIs) and return on investment (ROI) metrics, reporting them to management.
  • Comprehensive knowledge of FDA regulations and requirements pertaining to pharmaceutical marketing initiatives.
  • Exceptional communication skills and the ability to work collaboratively across functions.
  • Proven ability to thrive in a fast-paced, dynamic environment while managing multiple priorities and stakeholders.

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