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Childhood Cancer Parent Support Navigator
2 months ago
This role is situated within the Bona Lab, part of the Pediatric Outcomes research initiative.
The focus of the Bona Lab is to enhance outcomes for children battling cancer by thoroughly examining social determinants of health as potential risk factors in clinical trials and identifying intervention opportunities.
The Childhood Cancer Parent Support Navigator will spearhead the COMPRENDO initiative aimed at Spanish-speaking parents or guardians of children recently diagnosed with cancer. This includes conducting in-person peer navigation sessions during clinical treatment consent discussions.
The Navigator will offer vital information and decision-making resources, adhering to the research protocol, to assist parents and guardians in comprehending treatment clinical trials.
Building robust relationships with parents of pediatric cancer patients is essential to enhance their experience and understanding of the consent process for cancer treatment.
This role will also clarify the distinctions between Standard of Care and Treatment Clinical Trials, guiding parents in formulating pertinent questions for their child's oncology team.
The Childhood Cancer Parent Support Navigator is a research-oriented position that collaborates closely with the healthcare team, which may include physicians, nurses, social workers, and other clinical personnel to support both parents and patients.
Responsibilities include meeting with parents of pediatric cancer patients to deliver assigned research interventions and participating in informed consent discussions to facilitate inquiries.
At Dana-Farber Cancer Institute, we are committed to groundbreaking advancements in cancer research and patient care. Our mission encompasses conquering cancer, HIV/AIDS, and related diseases.
We aim to foster an inclusive, diverse, and equitable environment, providing compassionate and comprehensive care to individuals from all backgrounds, while designing initiatives to promote public health, particularly among high-risk and underserved communities.
Our pioneering research propels treatment advancements, we educate future physician-researchers, and we collaborate with esteemed partners, including other Harvard Medical School-affiliated institutions.
Key Responsibilities:
- Establish connections with parents of children with cancer to deliver protocol-specific support.
- Communicate effectively with healthcare team members to facilitate informed consent discussions with parents.
- Observe, assess, and report potential challenges to appropriate team members.
- Maintain strict confidentiality in line with institutional policies.
- Meet with parents/guardians and patients before and after oncology appointments to facilitate discussions and clarify information.
- Participate in informed consent processes alongside oncology doctors, parents, and patients.
- Ensure documentation is maintained as required by research protocols and institutional policies.
- Attend meetings and conference calls as directed.
- Complete assigned study tasks.
Qualifications:
- Minimum Education: High school diploma or GED required; Associate degree preferred.
- Minimum Experience: Lived experience of having a child with cancer is required; bilingual (English/Spanish) preferred.
- Prior exposure to treatment clinical trials is preferred. 1-2 years of experience in a related role (e.g., parent advocate, parent liaison, patient navigation, social work, health coaching, community health work) is preferred.
- Experience with community health organizations is advantageous.
- Familiarity with navigating issues related to death and dying is preferred.
Required Knowledge, Skills, and Abilities:
- Strong understanding of cultural competency and humility.
- Passionate, trustworthy, and empathetic demeanor.
- Ability to build relationships with diverse individuals, including parents, organizational members, and healthcare providers.
- Excellent communication and interpersonal skills, with the ability to convey information clearly to parents and healthcare team members.
- Capability to support decision-making and address parents' questions through motivational interviewing.
- Organized, flexible, and adaptable to changing needs.
- Must practice discretion and adhere to hospital confidentiality guidelines.
- Proficient in computer skills, including Microsoft Office.
At Dana-Farber Cancer Institute, we strive to cultivate an innovative, caring, and inclusive environment where every patient, family member, and staff member feels a sense of belonging. We are dedicated to diversifying our faculty and staff as we work relentlessly to alleviate the burden of cancer for all.
