Director of Community Programs

2 weeks ago

Wheaton, United States Sick Cells Full time

Director of Community Programs (Ambassador and Faces Programs)


Our client, Sick Cells, is a nonprofit with the mission to improve the quality of life and care for people living with sickle cell disease (SCD), including ending the stigma of SCD. Their approach includes shaping public policy and creatively educating the SCD community and society overall.


They are looking for a Director of Community Programs to join their team. This is a hybrid position in Wheaton, IL with a minimum of two days in the office, and a four-day work week (Mon-Thurs). This person will report to the President.


To these ends, Sick Cells is working to:

  1. Elevate the voices of the people living with sickle cell and the entire SCD community,
  2. Highlight the grave challenges and disparities this community faces,
  3. Unite and Empower the sickle cell disease community to effectively self-advocate.


Travel: This role requires work travel. Travel includes conferences, offsite meetings, and meetings with remote staff. There is about 30% travel.


Role Overview: The Director of Community Programs for Sick Cells will provide leadership for the Ambassador Program and Faces of SCD Storytelling Program. This role requires independent problem solving, excellent written and verbal communication skills, and the ability to manage multiple team members. The Director will maintain and expand the programs, work closely with the SCD community, and foster new and existing relationships.


Essential Duties and Responsibilities Include the Following:

Program Management (50%)

  • Lead activities related to the Faces of SCD Storytelling Program and the Ambassador Program
  • Strategize recruitment methods for programs
  • Review stories prior to publication
  • Develop and report metrics for programs
  • Identify topics for and plan the priority topic meetings (PTM)
  • Recruit speakers and external subject matter experts related to key topic areas
  • Strategize and implement growth plans for programs
  • Maintain registry of Ambassadors and storytelling participants
  • Plan Ambassador Policy Forum in coordination with Government Affairs team

Communications (30%):

  • Manage communications staff
  • Oversee development of content and build educational campaigns for social media accounts
  • Oversee management of monthly content for all platforms in Sprout Social
  • Manage social media accounts when necessary
  • Contribute content for monthly newsletters and act as final reviewer
  • Design toolkits for the Ambassador program
  • Communicate complex topics through social media posts, one-pagers, and toolkits for internal and external use
  • Contribute to blogs, white papers, and/or other publications
  • Report on work to various external stakeholders
  • Lead select research initiatives, including identifying themes, conducting literature reviews, compiling findings, writing reports, and summarizing main ideas


Organizational Support & Management (20%):

  • Collaborate with advocacy team in program development and planning
  • Supervise 2-4 employees
  • Ad hoc research support (listening sessions, participant recruitment, report writing)
  • Participate in writing grant applications, fundraising, and other business development tasks, as needed


Knowledge/Skills Requirements Include the Following:

  • Bachelor's degree in Public Health, Communications, Management, or equivalent is required
  • Minimum of ten (7+) years of related experience
  • Previous management experience required
  • Comfort with public speaking
  • Working knowledge of the SCD community or similar communities to understand community dynamics
  • Fluent in Canva or other graphic design engine or ability to learn
  • Fluent in CRMs
  • Experience with or ability to learn Sprout Social
  • Excellent organizational skills with high level of attention to detail and follow-up
  • Strong oral and written communication skills, with the ability to interact with all levels of internal and external management
  • Ability to maintain confidentiality of highly sensitive information
  • Desktop computer skills (Microsoft Outlook, Word, PowerPoint, etc.)
  • Ability to work independently as well as within a team
  • Working knowledge about multiple social media platforms (Twitter, Facebook, Instagram, LinkedIn) or interest in learning


Benefits Include the Following:

403(b) matching

Dental and vision insurance

Health insurance

4-day work week, hybrid role

Continuing education stipend

Paid Leave

Parental leave

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