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Parent Support Research Coordinator

2 months ago


Boston, Massachusetts, United States Dana-Farber Cancer Institute Full time
Position Summary
This role is situated within the Bona Lab, part of the Pediatric Outcomes research initiative.

The Bona Lab is dedicated to enhancing outcomes for children with cancer by systematically evaluating social determinants of health as risk factors in clinical trials and identifying potential intervention targets.

The Parent Support Research Coordinator will spearhead the COMPRENDO initiative aimed at Spanish-speaking parents or guardians of children recently diagnosed with cancer. This includes conducting in-person peer navigation sessions during clinical treatment consent discussions.

The Parent Support Research Coordinator will offer vital information and decision-making resources as outlined in the research protocol, assisting parents and guardians in comprehending treatment clinical trials.

Building strong connections with parents of pediatric cancer patients is essential to improve their understanding and experience of the consent process for cancer treatment.

This role will clarify the distinctions between Standard of Care and Treatment Clinical Trials, aiding parents in formulating pertinent questions for their child's oncology healthcare provider.

As a research-focused position, the Parent Support Research Coordinator will collaborate closely with the healthcare team, which may include physicians, nurses, social workers, and other clinical personnel to support both parents and patients.

Responsibilities include meeting with parents of pediatric cancer patients to implement designated research interventions and participating in informed consent discussions to facilitate inquiries.

At Dana-Farber Cancer Institute, we are committed to groundbreaking research and exceptional patient care. We strive to foster an inclusive, diverse, and equitable environment, providing compassionate care to patients from all backgrounds and developing programs to enhance public health, particularly among high-risk and underserved communities.

We conduct pioneering research that propels treatment advancements, educate future physician-researchers, and collaborate with esteemed partners, including other Harvard Medical School-affiliated institutions.

Key Responsibilities
- Establish connections with parents of children with cancer to deliver protocol-specified support.
- Facilitate communication with healthcare team members to enhance treatment informed consent discussions with parents.
- Observe, assess, and report potential challenges to appropriate team members while maintaining strict confidentiality in line with institutional policies.
- Engage with parents and patients before and after oncology appointments to clarify information and facilitate discussions.
- Collaborate with the healthcare team regarding informed consent processes involving parents and patients.
- Maintain documentation as required by research protocols and institutional policies.
- Attend meetings and conference calls as directed.
- Complete assigned study tasks.

Qualifications
- Minimum Education: High school diploma or GED required; Associate degree preferred.
- Minimum Experience: Lived experience of having a child with cancer is essential; bilingual (English/Spanish) is preferred.
- Prior exposure to treatment clinical trials is advantageous. 1-2 years of experience in a related role (e.g., parent advocate, parent liaison, patient navigation, social work, health coaching, community health work) is preferred.
- Experience with community health organizations is beneficial; exposure to navigating issues of death and dying is also preferred.

Knowledge, Skills, and Abilities Required
- Strong understanding of cultural competency and humility.
- Passionate, trustworthy, and empathetic demeanor.
- Ability to foster relationships with diverse individuals, including parents, organizational members, and healthcare providers.
- Excellent communication and interpersonal skills, with the ability to convey information clearly to parents and healthcare team members.
- Capacity to support decision-making and address parents' inquiries through motivational interviewing techniques.
- Organized, flexible, and adaptable to changing needs.
- Must practice discretion and adhere to hospital confidentiality guidelines.
- Proficient in computer skills, including Microsoft Office.

At Dana-Farber Cancer Institute, we are dedicated to creating an innovative, caring, and inclusive environment where every patient, family member, and staff member feels valued. We are equally committed to diversifying our faculty and staff, recognizing that cancer knows no boundaries.