Senior Information Specialist

3 hours ago

Rockville, Maryland, United States TBWA\Chiat\Day Full time
About the Role

Axle is a leading bioscience and information technology company that offers cutting-edge advancements in translational research, biomedical informatics, and data science applications to research centers and healthcare organizations nationally and abroad.

We are seeking a highly skilled Sr. Information Specialist to join our vibrant team at the National Institutes of Health (NIH) supporting the National Center for Advancing Translational Sciences (NCATS) located in Rockville, MD.

Key Responsibilities
  • Conduct advanced research on rare diseases, utilizing scientific literature, databases, and publicly available resources to address complex information requests.
  • Serve as a subject matter expert, providing guidance and technical expertise on rare disease information to both internal and external stakeholders.
  • Lead the development and maintenance of databases and resources, ensuring information accuracy and relevance.
  • Oversee the documentation and reporting of research findings and responses to inquiries using a case management system (Salesforce or similar).
  • Mentor and train junior Information Specialists, offering support in handling more challenging requests and improving their research skills.
  • Collaborate with cross-functional teams to develop resources, FAQs, and guides to streamline information dissemination.
  • Analyze trends in information requests to recommend process improvements and resource development.
  • Ensure compliance with privacy, data security, and NIH guidelines in all communications and information handling.
  • Provide high-level support to researchers, healthcare professionals, and the public by answering inquiries via multiple communication channels.
  • Stay up to date on the latest developments in rare disease research and other related fields to ensure the most current information is available.
  • Contribute to strategic planning, offering recommendations to improve the efficiency of the information management process.
  • Handle complex or escalated inquiries that require specialized knowledge and in-depth research.
  • Participate in and present at internal and external meetings, webinars, or training sessions to share knowledge and best practices.
Requirements
  • Minimum 4-5 years of experience in an information management, research, or support role, with at least 2 years in a senior or leadership capacity.
  • Proven ability to conduct advanced research and synthesize complex information from a variety of sources.
  • Excellent written and verbal communication skills, with the ability to convey detailed, technical information clearly.
  • Experience with Salesforce or similar case management tools.
  • Strong organizational skills with attention to detail and accuracy.
  • Experience in training, mentoring, or leading a team of information professionals.
  • Familiarity with medical or scientific terminology, especially in the context of rare diseases.
  • Must adhere to NIH guidelines and data privacy standards.
  • Demonstrated problem-solving and critical-thinking abilities in handling complex information requests.
Preferred Skills
  • Experience in a healthcare, scientific, or educational environment.
  • Knowledge of rare disease advocacy or research communities.
  • Proficiency in database management, data analysis, and resource development.
  • Bilingual or multilingual skills are a plus.
Disclaimer

The above description is meant to illustrate the general nature of work and level of effort being performed by individuals assigned to this position or job description.

This is not restricted as a complete list of all skills, responsibilities, duties, and/or assignments required. Individuals may be required to perform duties outside of their position, job description, or responsibilities as needed.

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