Senior Director, Patient Advocacy and Rare Disease Engagement

The Role

Moderna is seeking a Senior Director of Patient Advocacy and Rare Disease Engagement to work within the entire rare disease organization to develop strong working relationships with Patient Advocacy organizations, key KOLs, and professional societies across the rare disease portfolio and progress common objectives to ensure betterment of patient care.Based in Cambridge, MA, this role will be a champion of the patient voice, gather critical insights and will partner closely with R&D, Commercial, Government Affairs, Communications, and other functions to inform a comprehensive, enterprise-wide Global Rare Disease Patient Advocacy Strategy spanning integrated programs and business priorities, in addition to leading the execution of the strategy with global and local colleagues.In addition, this role will support policy shaping objectives and facilitate engagement of patient groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions. Recognizing the connectivity of the healthcare ecosystem in rare disease, this role will also liaise with key professional societies and conduct scientific exchange with prioritized HCPs.

Heres What Youll Do

Build the Global Rare Disease Patient Advocacy strategy from clinical stage to market for Moderna and lead its successful execution. The role will have global responsibility to develop the patient advocacy strategy across key markets and lead execution of the strategy in collaboration with local teams by providing the expertise and leveraging local relationships. Select prioritized countries include the United States, Japan, Saudi Arabia, Germany, and the UK Drive, build, and enhance strategic alliances with national and global Patient Advocacy Groups such as NORD and EURORDIS that have a strong interest in rare disease policy through touch bases and other authentic engagements. This includes mapping key patients and rare disease groups in key markets and building relationships that enables progressing critical business objectives and improve patient care. It is important that this role take a global view of patient advocacy and rapidly expand its impact outside the US. Lead engagement with various Scientific societies, PAGs, Rare Disease Advisory Councils to help build consensus and treatment guidelines when they need to be fully developed or updated. Represent Moderna at key Patient Advocacy Conferences and symposia, at national and international scientific congresses in order to progress partnerships that support better patient care. Develop and execute Patient Advisory Boards, Patient Leadership Councils and other forums in support of critical objectives pertaining to better understanding the patient true unmet need, gathering insights, supporting the amplification of the patient voice and ultimately, enabling Moderna to become embedded in the rare disease communities and ecosystem to better support patients and external stakeholders. Work closely with the government relations, regulatory and access teams to facilitate engagement of patients groups with regulatory authorities, government and health technology assessment groups to ensure that patient perspective is at the center of all decisions. Collaborate with government relations to develop policy strategies and position papers supporting better patients care, and lead such execution Ensure that patient facing materials are meaningful and impactful based on patient advisory group feedback Represent the voice ofindependent patient communities to internal stakeholdersto ensure that patient perspectives are integrated into the rare disease pipeline decision-making processes. Actively monitor new developments and thought leader insights in the field of patient advocacy and incorporate such developments, ideas, and strategies into the development and execution of programs Partner with thought leaders to amplify impact and progress business objectives. Manage the Patient Advocacy budget and supervise the management of any external partners or agency resources. Establish strategic relationships with key professional societies around the world to advance the understanding of mRNA treatments, understand treatment guidelines, and work toward improved care of individuals living with Rare Diseases Conduct scientific exchange with HCPs in the US to further support the education and insight gathering among rare disease KOLs Collaborate with HR and communications in the development and execution of patient- centered materials and company-wide initiatives including disease awareness campaigns and events that connect employees to the patient journey. Heres What Youll Need (Minimum Qualifications) Advanced degree in relevant field (MD, PharmD, PhD) 12+ years experience of relevant patient advocacy or related experience in the biotech/pharma industry the pharmaceutical industry or non-profit advocacy organization Experience in external engagement with HCPs Experience in external engagements with professional societies Demonstrated knowledge of the biotech/pharma industry, including deep understanding of the Legal, Regulatory, and Compliance environment, including a strong understanding of guidelines and best practices for patient advocacy engagement Heres What Youll Bring to the Table (Preferred Qualifications) Ability to champion the voice of patients and families Ability to work in a fast-paced environment, prioritize tasks, and successfully manage multiple projects Demonstrated ability to effectively work independently A collaborative spirit, the ability to see anothers point of view, empathy, and the ability to identify a path forward in ambiguous situations Strong oral and written communication skills; ability to lead and influence without authority Ability to successfully develop and maintain strong working relationships between both cross-functional internal colleagues and external stakeholders A desire to make an impact as part of a high-growth, transformational company that is Bold, Relentless, Curious, and CollaborativeModerna is pleased to provide you and your family with a comprehensive and innovative suite of benefits, including:Highly competitive and inclusive medical, dental and vision coverage optionsFlexible Spending Accounts for medical expenses and dependent care expensesLifestyle Spending Account funds to help you engage in personal enrichment and self-care activitiesFamily care benefits, including subsidized back-up care options and on-demand tutoringFree premium access to fitness, nutrition, and mindfulness classesExclusive preferred pricing on Peloton fitness equipmentAdoption and family-planning benefitsDedicated care coordination support for our LGBTQ+ communityGenerous paid time off, including:
Vacation, sick time and holidays
Volunteer time to participate within your community
Discretionary year-end shutdown
Paid sabbatical after 5 years; every 3 years thereafterGenerous Paid Leave offerings, including 18 weeks of 100% paid parental leave for all new parents 401k match and Financial Planning toolsModerna-paid Life, LTD and STD insurance coverages, as well as voluntary benefit optionsComplimentary concierge service including home services research, travel booking, and entertainment requestsFree parking or subsidized commuter passesLocation-specific perks and extras About Moderna Since our founding in 2010, we have aspired to build the leading mRNA technology platform, theinfrastructure to reimagine how medicines are created and delivered, and a world-class team. We believe in giving our people a platform to change medicine and an opportunity to change the world. By living our mission, values, and mindsets every day, our peopleare the driving force behind our scientific progress and our culture.Together, we are creating a culture of belonging and building an organization that cares deeply for our patients, our employees, the environment, and our communities.

We are proud to have been recognized as a Science Magazine Top Biopharma Employer, a Fast Company Best Workplace for Innovators, and a Great Place to Work in the U.S. As we build our company, we have always believed an in-person culture is critical to our success. Moderna champions the significant benefits of in-office collaboration by embracing a 70/30 work model. This 70% in-office structure helps to foster a culture rich in innovation, teamwork, and direct mentorship. Join us in shaping a world where every interaction is an opportunity to learn, contribute and make a meaningful impact.

If you want to make a difference and join a team that is changing the future of medicine, we invite you to visit to learn more about our current opportunities.

Moderna is a smoke-free, alcohol-free and drug-free work environment.

Moderna is a place where everyone can grow. If you meet the Basic Qualifications for the role and you would be excited to contribute to our mission every day, please apply

Moderna is proud to be an equal opportunity workplace and is an affirmative action employer.

Moderna is committed to equal employment opportunity and non-discrimination for all employees and qualified applicants without regard to a person's race, color, sex, gender identity or expression, age, religion, national origin, ancestry or citizenship, ethnicity, disability, military or protected veteran status, genetic information, sexual orientation, marital or familial status, or any other personal characteristic protected under applicable law. Moderna is an E-Verify Employer in the United States. We also consider qualified applicants regardless of criminal histories, consistent with legal requirements.

Belonging, Inclusion, and Diversity are critical to the success of our company and our impact on society. Were focused on attracting, retaining, developing, and advancing our employees and believe that by cultivating diverse experiences, backgrounds, and ideas, we can provide an environment where every employee is able to contribute their best.

Moderna is committed to offering reasonable accommodations to qualified job applicants with disabilities. Any applicant requiring an accommodation in connection with the hiring process and/or to perform the essential functions of the position for which the applicant has applied should contact the Accommodations team at (EEO/AAP Employer)

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