Rare Disease Family Access Manager

Found in: beBee S US - 3 weeks ago

Detroit, United States Biogen Full time

About This Role

The purpose of this position is to be the patient facing expert on the Rare Disease patient journey and the liaison for all Biogen team members involved in the process. The Family Access Manager (FAM) is responsible for engaging cross functional stakeholders on next steps to support appropriate patients getting started and staying on rare disease therapies. The FAM will get to the root of any logistical and/or non-clinical issues impacting treatment initiation and ongoing therapy. They are able to identify the point person, tools or resources to resolve the issue (Account Executive, Market Access & Reimbursement, and/or Case Management). The FAM will have an in depth understanding of the HCP prescribing account, the administration site of care, and the payer approval process at the patient level.

The FAM will provide appropriate patient education and support site of care contacts as they navigate non-clinical barriers, along with reimbursement education, disease state and product education, advocacy and support for individuals living with rare diseases and their loved ones/caregivers. The FAM will interact with physicians, nurses, pharmacists, ancillary staff, patients/families/caregivers, and advocacy partners to prevent and address barriers to patient access and will serve as the primary source for all local/regional patient advocacy activities.

What You'll Do

  • Support patients/families to work through the steps required to gain access to therapy (disease and product education, site of care logistics, understanding of payer policy and procedure, and other support services)

  • Play the role of patient advocate in cross functional meetings with internal partners (Case Manager, Account Executive, Market Access & Reimbursement to build and maintain accurate case plans for patients (e.g. case histories, insurance, ongoing coverage needs, treatment plan changes, etc.)

  • Works cross functionally to identify and support the resolution of patient access barriers including insurance coverage, reimbursement, financial limitations, site of care, procurement/distribution issues

  • Works with Market Access & Reimbursement team members to ensure appropriate reimbursement, engage with payers, specialty pharmacies, and specialty distributors to ensure access

  • Must be able to provide strong emotional support for individuals living with rare diseases and their loved ones/caregivers and collaborate with them in a way that allows for forward progress

  • Be knowledgeable of any changes in the patient access environment to proactively identify issues that may impact access and communicate information appropriately to patients/caregivers

  • Complete a comprehensive assessment of the individual needs of the patient taking into account the patient's family and team of healthcare providers. This assessment will include understanding the individual's payer policies, plan designs, including Medicaid coverage if applicable, as well as the healthcare system local to the patient

  • Develop and offer solutions to the family, when necessary, that may also include communication of alternative insurance options and how families can best connect to available resources

  • Educates patients, families, and caregivers on product and all Biogen Patient services

  • Develop activities with the goal of achieving greater openness and understanding of rare disease

  • Build your own rare disease network/relationships through local advocacy groups, rare disease related events, and attending national conferences

  • Become an expert on the Rare Disease portfolio and Biogen resources to provide the highest level of patient/caregiver support with the goal of positively impacting the patient journey

Who You Are You have a passion to empower and educate patients and their sites of care through a dynami

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