Sr. Manager, Patient Advocacy, Global Rare Diseases

Date: Sep 23, 2025

Department: GRD Patient Advocacy

Job Type: Direct Employee

Business Area: Public Affairs, Communications & CSR

Contract Type: Permanent

Location:Boston, MA, US

About us

Based in Parma, Italy, Chiesi is an international research-focused pharmaceuticals and healthcare group with 90 years' experience, operating in 30 countries with more than 6,000 employees (Chiesi Group). To achieve its mission of improving people's quality of life by acting responsibly towards society and the environment, the Group research, develops and markets innovative drugs in its three therapeutic areas: AIR (products and services that promote respiration, from new-born to adult populations), RARE (treatment for patients with rare and ultra-rare diseases) and CARE (products and services that support special care and consumer-facing self-care).

We are proud to be the largest global pharmaceutical group to be awarded B Corp Certification, a recognition of high social and environmental standards. We are a reliable company that adopts and promotes transparent ethical behavior at all levels.

We are committed to embrace diversity, inclusion and equal opportunities. In fact, we are a global family made up of different cultures, different genders, generations, ethnicities, abilities, sexual identities and many other enriching diversities.

Chiesi USA

Chiesi USA is a specialty pharmaceutical company focused on developing and promoting products for the hospital, adjacent specialty and rare disease markets. We are a B Corp and Benefit company awarded Top Employer status for six consecutive years and certified as a Great Place to Work.

At Chiesi, we share an entrepreneurial spirit and act as a force for good, pursuing high social and environmental standards, to ensure the wellbeing of our people, patients, and communities. We offer a work environment where professionals have the opportunity to build a purposeful career focused on helping others while achieving a fulfilling work-life balance, meeting exciting challenges, and engaging in important and rewarding work.

Who we are looking for

Purpose

Chiesi is looking for a highly motivated, collaborative, and compassionate individual for the position of Sr. Manager, Patient Advocacy in the Rare Diseases business unit.

Reporting to the Head Patient Advocacy, this individual will develop and execute programs in the US, Canada, and Latin America (Americas) based on the global patient advocacy strategy. Rare disease therapeutic areas of focus include Alpha-mannosidosis and Fabry disease. We are looking for someone who has the desire to make a difference for patients and community by developing and expanding relationship-partnerships with patient advocacy organizations and ensure that the needs and insights from these relationships are reflected in Chiesi's decision-making process. You will represent the "voice of the patient" to educate internal cross-functional teams and champion patient-centered ideas and programs.

Main Responsibilities

• Contribute to the Global Rare Disease patient advocacy strategy, reflecting Chiesi's commitment to the patient community.
• Develop and implement plans to directly engage US and Canadian patient communities and share projects and programs with Chiesi LATAM partners while working cross-functionally with key internal partners.
• Serve as primary point of contact to build and maintain collaborative, long-term partnerships with stakeholders and patient advocacy groups and compliantly exchange of information related to Chiesi Rare Diseases areas of interest.
• Represent the patient perspective during planning strategy meetings and contribute to the successful implementation and achievement of business goals.
• Propose and implement patient advocacy programs and partnerships that include educational programs, advisory boards, patient speaker engagement, clinical trial awareness, policy advocacy, etc.
• Work with advocacy groups to provide compliant resources to help them develop, grow, and build capabilities.
• Champion the patient voice based on understanding the patient perspective to inform internal decision making.
• Conduct engagements in adherence with legal, compliance and regulatory guidelines to ensure Chiesi Rare Diseases relationships with advocacy stakeholders are respectful and appropriate.
• Represent Chiesi Rare Diseases at specific meetings and present when needed.

Experience Required

• 5+ years of experience in the bio-pharmaceutical environment with at least 2 years of relevant professional experience in rare disease and patient advocacy.
• Understanding of drug research and clinical development, regulatory, compliance and disclosure guidelines.
• Strong listening, communication, networking, and interpersonal skills; ability to build relationships of trust quickly with a wide range of stakeholders.
• Ability to manage external expectations conscientiously and diplomatically for high-risk early-stage programs.
• Ability to translate terms and concepts to audiences with different perspectives and levels of understanding.
• Ability to work collaboratively across all functions and levels of the organization and influence without reporting authority.
• Strong project and program management skills. · Based in Boston and must be willing and able to travel nationally and internationally (approximately 40%).

Education

Bachelor's degree in social science, public health, science, or related field; advanced degree a plus.

What we offer

No matter where your path starts at Chiesi, it leads to inspiring possibilities. Your future is our focus, and we are committed to nurturing your development in our dynamic, friendly environment with access to resources and training every step of the way.

We provide top-class benefits, including comprehensive healthcare programs, work-life balance initiatives, and robust relocation support. Our salary package is competitive, comprising a basic salary, performance bonuses, and benefits benchmarked against the external market. Additionally, we offer flexible working arrangements, remote work options, and tax assistance services for foreign colleagues, all designed to help you thrive.

Chiesi USA is an equal opportunity employer committed to hiring a diverse work force at all levels of our business. All qualified applicants receive consideration for employment without regard to race, national origin, age, sex, religion, disability, marital status, veteran status, or any other basis protected by local, state or federal law. This policy applies with regard to all aspects of one's employment, including hiring, transfer, promotion, compensation, eligibility for benefits and termination.