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Clinical Care Specialist
2 months ago
We are seeking a highly skilled Clinical Care Specialist to join our team at the Children's Hospital of Philadelphia. As a key member of our Division of Human Genetics, Section of Metabolism, Lysosomal Storage Disorders Program, you will play a critical role in the diagnosis and management of patients with lysosomal storage disorders (LSD) and inborn errors of metabolism.
Responsibilities:- Prepare for clinic visits by reviewing recent information from CHOP electronic medical records and abstracting relevant data.
- Obtain updated patient history, order laboratory and imaging studies, and discuss the updated plan of care with patients and families.
- Communicate test results and changes to the medical plan with patients and families.
- Manage enzyme replacement therapies, including communication with authorization teams and pharmaceutical case managers.
- Collaborate with Genetic Counselor to coordinate genetic and biochemical testing.
- Oversee management of LSD patient lists and organize local meetings with patient support groups.
- Participate in clinical trials, research studies, and patient registries.
- Manage a cohort of patients, perform daily assessments, collect data, and analyze findings to inform family-centered plans of care.
- Master's degree in Nursing or Physician Assistant studies.
- Registered Nurse or Physician Assistant licensure in Pennsylvania or New Jersey.
- Specialty certification as a Nurse Practitioner or Physician Assistant.
- Prescriptive authority in Pennsylvania or New Jersey.
We are committed to building an inclusive culture where employees feel a sense of belonging, connection, and community within their workplace. We strongly encourage all candidates of diverse backgrounds and lived experiences to apply.
